E-nablio

Fri 29 Sep 2017 10:51PM

e-NABLE Project Proposals

Jeremy Simon Public Seen by 124

Have a project you'd like to undertake for the e-NABLE volunteer community? Create a new thread in the E-nablio to discuss it, and when you think it's it's ripe, write a proposal in that thread to allow the community to vote on whether or not the project should move forward. Project proposals may include a request for funding, but this is optional (some projects may not require funding).

To ensure everyone has the information needed to make an informed decision, each project proposal should include the following information at a minimum:

Clear description of work to be performed
Expected results/impact
Estimate of work effort involved (# of hours)
Estimated timeline for completion of the effort
Names of individuals responsible for completing work
Amount of funding being requested (if any) - please specify an exact amount, not a range. If the project is approved, we need to know how much funding to allocate
A brief overview of your background with e-NABLE (work you've done in the past) - so people know who is proposing the project

Feel free to include a link to a Google Doc with a more detailed project outline.

Ownership of work products

In the spirit of the e-NABLE community, any work products resulting from a funded project will be considered open source and available for anyone to use. Please be prepared to share your work so others may benefit from your results.

To Submit a Project Proposal

To submit a project proposal, go to the main E-nablio page on Loomio and click the New Decision button, then select Proposal. Copy and paste the template content below and provide the details for your proposal. Set the voting duration to at least one week (preferably longer) to allow sufficient community input.

Project Approval

Each project proposal must receive at least 15 votes with at least 80% of the votes in support of the project in order to be approved. This number of required votes may increase in the future, as participation in this process grows stronger.

For determining the approval percentage, "Abstain" votes are not counted in the total. So the formula for the approval percentage is:
(A / (A + D)) * 100
Where A = # of Agree Votes and D = # of Disagree Votes

To be approved, both criteria (minimum number of votes and percentage support) must be met. For example, if a proposal has 20 "Agree" votes and 10 "Disagree" votes, that would meet the minimum number of votes, but it would not meet the required percentage (since only 66.7% of the votes are in support of the project). In this case, the project would not be approved.

Project Sponsorship

While not required, it is recommended that mini-grant proposals be sponsored by an e-NABLE Chapter. A proposal that includes a chapter sponsorship will have a higher likelihood of being approved.

Here are some suggestions for having a proposal sponsored:

The project owner can be part of an e-NABLE Chapter and the chapter can act as project sponsor.
If the project owner is not part of a chapter, the project owner may connect with an existing chapter and ask them to sponsor the project.
The project owner will report the project status to the chapter, and the chapter will report back to the community via weekly SPC (Strategic Planning Committee) meetings.
The funds will be given to the chapter, and the chapter will allocate funds to the project owner/team based on project deliverables.
The project owner will be accountable for the project deliverables and the Chapter will act as the project sponsor, ensuring that project deliverables are completed and commitments fulfilled.

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Project Proposal Template (copy and paste the below content to create your own proposal)

Proposals can also include images, links, etc., using Markdown.

A convenient markdown editor can be found here:

Description of Proposed Project:

[Replace with your content]

Expected results/impact:

[Replace with your content]

Estimate of work effort involved:

[Replace with your content]

Estimated timeline for completion:

[Replace with your content]

Names of individuals responsible for deliverables:

[Replace with your content]

Amount of funding being requested:

[Replace with your content]

A brief overview of my background with e-NABLE:

[Replace with your content]

NOTE: The formatting will not transfer when you copy and paste to a new proposal. Preface a line with # (followed by a space) to format it as a heading.

Poll Created Sat 30 Sep 2017 2:00AM

e-NABLE PMO Team - No funding required Closed Mon 23 Oct 2017 1:44AM

The proposal is to create an e-NABLE PMO structure to help plan, control, and deploy the projects approved by e-NABLE Project Proposals group on Loomio. The team will provide project guidelines and basic helpful project management structure to help the teams in charge of managing e-NABLE projects archive their goals inside planned schedule and budget.

Working with e-NABLE Project Proposals group we will create a Proof of Concept and based on the results will be possible to define if this can become a fixed structure to support future e-NABLE projects.

Macro Business case on http://bit.ly/2wZ4C13

Results

Option	% of points	Voters
Agree	91.7%	11
Abstain	8.3%	1
Disagree	0.0%	0
Block	0.0%	0
Undecided	0%	22

12 of 34 people have participated (35%)

Ashley Turner

Sat 30 Sep 2017 10:24PM

I believe this could help in many ways, but I really like having the structure to work with.

Everton Lins

Tue 3 Oct 2017 11:46AM

As I am the one proposing I will abstain.

Luis Bermudez

Tue 3 Oct 2017 12:34PM

Light PMO framework on top of existing projects is something I'm okay with.

Luis Bermudez Sat 30 Sep 2017 11:38AM

For example, this would not count as funded? Since it does not have 15 votes?
https://www.loomio.org/p/X5GPjklA/ready-for-funding-enable-alliance-adopt-a-school-program

Luis Bermudez Sat 30 Sep 2017 11:40AM

15 sounds low in general. But sounds a bit high, when considering there are only 22 total voting members here. And not all of them necessarily vote. Thoughts?

Jen Owen Sat 30 Sep 2017 6:18PM

I would like to know this as well.

I do not think very many people who voted on the "Use of funding ideas" post are checking back in here regularly or even at all.

The 15 votes needed may never come when only a handful of people are active at all.

Then what?

Jen Owen Sat 30 Sep 2017 6:19PM

Do I need to resubmit the two that have already been voted on in another thread and then hope that people come back and revote?

Jon Schull Tue 24 Oct 2017 2:07PM

Since no funding was required, and since no one disagreed, I consider this standard adopted!

Poll Created Fri 3 Nov 2017 2:01PM

Using 3D Printed Prosthetic Hands to Improve the Quality of Life of Appalachian Children Closed Fri 24 Nov 2017 2:12PM

Outcome

by Jon Schull Sun 3 Dec 2017 2:25PM

Cole's proposal passes with 18 votes, all Agree!

You can submit a receipt for reimbursement (with justifications) to the Open Collective e-NABLE fund.

Keep us posted! It's a great initiative!

Description of Proposed Project:

I have received IRB approval from Lincoln Memorial University in Harrogate, Tennessee to conduct a study which will examine how e-NABLE devices affect the quality of life of children in the Southern Appalachian region. I will use both qualitative and quantitative measures, in the form of verified, standardized pediatric quality of life surveys, as well as Actigraph accelerometry, which will track how much the child is moving the affected limb in space before and after being fitted with the prosthetic. The accelerometer will be worn on the affected limb a 2 week period to gather baseline data, and then fixed to an e-NABLE device for an eight-week interval. I will be using the Pediatric Quality of Life (PedsQL) questionnaires, as well as the Pediatric Outcomes Data Collection Instrument (PODCI), which will be completed by parents/guardians of participants. Participants over the age of eight years old will be asked to complete age-appropriate questionnaires. Questionnaires will be administered during fabrication of the device, and again after the eight week wear interval. All fitting of e-NABLE devices and accelerometers will be facilitated using the professional recommendations of consulting occupational therapists and certified prosthetists.

Expected results/impact:

This study will provide valuable insights into how these devices impact the quality of life of their users, which will lead to data based suggestions for modification and improvements. This study will also give data driven results in regards to the altruistic and humanitarian goals of e-NABLE. I hypothesize that there will be statistically significant increase of accelerometry activity levels after being fitted with an e-NABLE device, as well as significant improvement of quality of life metrics.

Estimate of work effort involved:

I anticipate that if I will spend approximately 10 hours per participant. This includes device assembly and fitting, data collection, and data analysis. I am hoping to have a sample size of 3-5 participants, therefore total work effort will be about 30-50 hours.

Estimated timeline for completion:

I estimate that it will take six months to one year to collect and analyze data.

Names of individuals responsible for deliverables:

Cole Carter

Amount of funding being requested:

I am requesting $1000, which will cover the cost of an Actigraph software license. This license will belong to e-NABLE, and will be available to other volunteers or researchers who seek to examine activity levels and how they relate to 3D printed devices.

A brief overview of my background with e-NABLE:

I have been a verified e-NABLE hand maker since May 2017. I have made a Phoenix for a 25 year old man, and I am currently working on devices for two children, ages 11 and 7. As stated above, all my work is done with the help of consulting certified prosthetists and occupational therapists. I am a first year medical student and research fellow at Lincoln Memorial University, Debusk College of Osteopathic Medicine.

EDIT #2 (Updated Proposal): https://docs.google.com/document/d/e/2PACX-1vRMdiO56r925OkO9x_rvIxKy-dDqWtiXlOf9rUwEKey8L-iJ5p0pvdBMkIFsplWxlLSttWw83Gemj3H/pub

EDIT #3 (IRB: forms, surveys,etc) https://drive.google.com/file/d/1YHjh2HHKTk7c0IN4ieUxwHZDwsLwwd5P/view?usp=sharing
This is the most recent IRB approval (changes highlighted), complete with informed consent forms and surveys.

@jonschull Please see the attached proposal. Regarding the IRB, I am working on revisions for more efficient methodology. I will update soon.

@peterbinkley : Actigraphy is a common research method used to monitor and track activity levels. It has been shown to be an effective way to measure activity levels in children. I have found studies that have used Actigraphy to study lower limb and myoelectric prosthetic use. I have not found any studies that have used Actigraphy to study upper limb body powered prostheses. Thanks for asking!